Our dear little Rainbow, you are 9 months old.
It has been a long 9 months but the rewards are tremendous.
In 3 days, you have managed 3 months out of hospital. The only times we have been near a hospital is for an appointment. This will be something to celebrate. It will also be 6 months since your surgery journey began. 6 months since everyone realised that you did indeed need help.
In the last 3 months we have settled back in to family life together. You have just slotted right back in as a permanent member of the family. You adore being surrounded by your siblings and have a smile at hand to flash them as soon as you see them. You love to be involved in their games and you are more than happy to play ‘tents’ under the duvets or ‘aliens’ should the need arise.
That’s not to say the last 3 months have been easy. I have struggled to adapt to having you home. It’s been tough; I’ve worried, I’ve cried, I’ve stressed. Now, I just accept that you will only do what you want, when you want. It’s Rainbow’s way or the highway, it seems.
Over the last 3 months we’ve had plenty of appointments:
Physio are happy with your progress. We have a small concern regarding your shoulders but overall your progress has been phenomenal.
The dietician is overjoyed at your weight gain. Apparently, it’s not often that a child such as you succeeds in going from the 2nd centile to the 75th with such ease. There’s even talk of taking you off the high energy formula.
Speech & Language are enthusiastic about you. You have a perfect palette and “bags of potential”.
Since you left hospital, you have had a cardiac check up… I worried about it, I had no reason to be concerned but I was none-the-less.
I needn’t have been. Surgery was still deemed a success. The hole was indeed patched well. You do have a ‘right bundle branch block’ but apparently that’s common after a VSD repair. (It’s something to do with the electrical currents that keep the heart beating but the left side takes over the job and it’s not as worrying as it sounds). Your next check up is the end of September. Then we’ll probably end up with annual cardiac appointments.
We have also seen your community paediatrician. We have another gold star. She was really impressed with how vocal you are. There are no major issues that need addressing. It’s just a case of continue watching you develop.
The one thing I have noticed that is different with you to the others, is that your milestones seem more of an achievement. I’m more emotional over them. I think it’s partly down to everything you have been through but it’s also because I know you are my last baby. As you grow and achieve your firsts, I’m experiencing my ‘lasts’.
I am so proud of everything you have achieved already… I am enjoying every second of having you back…
Happy 9 months, little miss moo!
All my love,